Wednesday, 18 March 2009

Still runnin'

'1000 visitors to Prometheus!' greeted me the message in my inbox this morning. In little over 8 months, writing posts about disease and drugs, with no viral campaign or celebrity endorsement and next-to-no respect for deadlines, here we are: a 1000 visits to this humble blog. A milestone of sorts and yet I couldn't help but feel guilty about the whole thing. It's been over a month and nearly 120 visits to the site since my last post and I feel that I've somehow been neglectful not only of this blog but the loyal readers who have been with me in one way or another since the start of this experience. I’d like to apologise for that and try to offer the following as a way of explanation.

I mentioned in my last post that I was waiting to hear from my doctor as the treatment didn't seem to be working for me. When I received the phone call, it was indeed the news I didn’t want to hear. The viral load in my body had gone back to the pre-treatment levels which effectively meant my treatment was just not working at all and I was adivised to comlo off the treatment straight away. Not the best piece of news as you can imagine! I found all of this out over the phone [much to the chagrin of my loved ones] and I haven’t seen the doctor since then. I have an appointment on Friday but regardless of anything they might say, I now know I’ll have to wait at least a couple of years for a stronger version of the treatment to come onto the market. In the meantime, we might try and see what we can do with the Hep B but I’ll find out a lot more on Friday and I’ll be sure to post. Promise!

I've been drug-free for over a month now and needless to say it has been a period of reflection and big changes. I'll be sure to share this with everyone on a future post.

On the marathon front, things are going well and perhaps one of the very few silver linings from this situation is that I can now train without having to cope with the side effects of Interferon. Mind you, the withdrawal effects were quite strong and it's only in the last few days that I’ve felt like I’ve gone back to being pretty much me pre-Interferon. Now I ache and I’m very tired but it’s all down to the running!

Before I leave you let me thank you again for helping me to get this far and even though we didn't get the result we wanted this time around, the battle continues and I don't give up easily!

See you next week.

Peace!

4 comments:

anna said...

ay, that's really tough. thanks for writing and telling us.
looking forward to seeing you soon,
love anna xxx

Camille said...

Thanks for keeping in touch and keep up with the good work on the running front! hope to hear some good news from the doctors this week, thinking of you
camille xxx

Emily Benet said...

thanks for sharing
Hope ur trainers are good and
lots and lots of love xxxxx

Anna said...

Thanks for writing and sharing this with us. Your brave nature and beautiful writing speak reams of the potential of the human spirit. I truly hope for transformative developments on the drug side as soon as possible, and in the meantime, it seems perfectly clear that there are transformative developments within you every day which I watch with wonder. Sending much love from Delhi x x x

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