Story Of A Broken Toe

As many of you might have noticed already, it's been over four weeks since my last post. I promised when I started this blog that I would update it weekly and that, overall, I would take good care of it. However, I didn't take into account how exhausting my treatment would be when coupled with unforeseen complications [more on this in a bit] and the last few weeks have just proven to be a bit too much for me and I didn't feel like updating the blog at all. I even considered scrapping the whole thing a week ago when, after falling victim to an over-sensitised feeling of ennui, I felt that there really was no point in maintaining this blog since only a couple of people seemed to be really interested in it, noticing the unnatural lack of updating. Self-pity is not one of my favourite traits, hence that wasn't one of my proudest moments it must be said! Now, having remembered that this blog wasn't set up for the masses but for those people interested in knowing how this silly boy is doing, collecting useful info in a nice friendly way and for me to be able to chronicle this year of my life, I found my fingers itchy at work, desperate to write a new post for the blog.

So, I suppose I should start by explaining what gave rise to this period of over-the-top melancholy and like all good stories, it starts with a broken bone*! The day after my last post, on a rare mid-week night out, I broke a toe. It was a dramatic break too. Blood everywhere, toenails hanging by quite literally just a thread and the sort. The incident itself is a story that, for the purposes of this blog, is too long and not-wholly-relevant so it won't be included here, but you can read about it if you want to by clicking 'A Tale Of Toe Cities'.

So, after spending a good 3 hours in A & E ['Emergency Room' for those reading outside Britain] that night, feeling quite a lot of pain, stressing over blood spillages [see 'A Tale Of Toe Cities'] and getting home after 4am in the morning, I took stock of the situation and it wasn't good. I had to have a whole week of antibiotics [on top of my interferon treatment], limp all over the place [exerting even more effort on an already-exhausted body] and come to the realisation that, in spite of acting like nothing was happening in my life, I needed to be more careful with my health. It was a very tiring experience overall. I guess I'm only saying all this to try and trick you into liking me and overlook the fact that, through my own stupidity, I put my body through a lot of unnecessary strain.

I won't keep going on about broken toes anymore but instead I'll do what this blog is supposed to do and tell you how my Hep treatment is going. I'm still very tired but I've accepted that this might be the case for the next 40 weeks [Can you believe I've already gone through 8 weeks of treatment?] so I'm finding ways to just get used to it. I'm about to start going to the gym, playing football again and get on with my writing [i.e. Start writing!]. In short, just assimilate tiredness into my life and get on with it. Probably easier said than done but I guess we'll find out.

Apart from that and the bout of melancholy [already discussed at length! I promise I'll stop now] everything else is going fine. So, I'm pretty happy still and trying to stay as positive as possible.
Just to reiterate that I haven't forgotten about the blog, I will post a few interesting links I've come across over the last three weeks in the next few days.

And, finally, no matter what, I'll be posting next week without fail. So, welcome back and drop me a line if you want to!

*Disclaimer: I know of no great stories that start with broken bones!

For whom the bell tolls...

I live in a beautiful place in London, not that far from a very old clocktower that gives our neighbourhood a nice village-y feel where people come to bring up kids and have a nice, easy time on Sunday mornings. I love it!

However, as an insomniac, the clocktower plays the part of a torturer whenever I can't get to sleep at night. And never has that been so true as this week. Before my treatment started, a couple of sleepless nights were annoying but I could cope with it. This week, after a few weeks of tiredness, a night of sleeplesness resulted in me missing a day of work and feeling like I just wanted to bury my head in the ground and sleep for weeks on end. It was very hard.

Basically, what I'm trying to say is that it was a dificult week. Being tired all the time is becoming increasingly wearing as time goes by. I've been trying to tell you that it's not a horrible side effect but, as side effects go, tiredness is difficult. I'm starting to hate it!

That on the left is the weekly dose of drugs that are making me feel like this every week. I've had a full-on weekend [Saturday: My parent's 28th Wedding Anniversary! [Well done guys!], Sunday: Colombia's Independence Day] so this week might be hard as well. But I'll complain about that one next Sunday.

See you then!

Introducing Mr Billy-No-Weekends!

Remember when I merrily mentioned during the first week of my treatment that I was just feeling a little bit tired? And then when I worriedly mentioned last week that the tiredness and achiness remained? Well, three weeks in, I'm physically and emotionally drained! As a very active 25-year-old, suddenly facing waking up in the mornings being just as tired as I was when I went to bed and knowing that I've got a long day in front of me, it's e-x-h-a-u-s-t-i-n-g! It's pretty much like taking the juice away from the duracell bunny! Mean!

Anyway, it just means that by Friday evenings [the night of the injection] I'm ready for a wild weekend of crashing on my sofa looking like your stereotypical dope-head without the aid of recreational drugs! A barrel of laughs as you can imagine... Thankfully, my partner is an angel and life is not as bad as it could be.

Having got that off my chest, everything else is alright. The tiredness is an annoying side effect but one that relaxing under the sun will sort out nicely. I'm still very positive and I'm feeling healthy. I'm eating more than normal [I've gained a couple of kilos] and even my sleeping patterns are starting to resemble a normal person's fare.

That's my weekly update and if you want to know a bit more, you know the deal, drop me a line!

See you

Tiredness here to stay!

Second week into my treatment and I haven’t got much to report really which, depending where you’re standing, it’s either good news or bad news. As I mentioned last week , after my injection I just felt tired and my muscles a bit achy but that was it. Regrettably, the tiredness and achiness never went away and it was, needless to say, a long week. However, bearing in mind the long list of side effects I was presented with before I started my treatment, it’s going rather well!

This week I had to give myself the injection and it was a very shaky affair I must confess. I don’t know if it was fear or anticipation but my hands would not stop shaking. Thankfully I managed to do it and it was alright. The tiredness and achiness are still here and they seem to be here to stay but I’m feeling very positive and very happy that no big side effects have really kicked in so, all in all, another good week I’d say!

That’s it for this week really. If you want to find out a bit more, drop me a line as I’d be happy to hear from you.

Thanks for reading.

UPDATE: I forgot to mention something else. I have had two injections so far and I've got two big red spots in my stomach where the injections went in. It is a well-known side effect and nothing to worry about but 12 days after the first injection, the first of the lovely red spots is still going strong. They are the size of a golf ball and a bit tender to touch. Nothing really massive really but I thought I should mention it anyway.

Good news for Hep C sufferers

Hello,

The EU has just approved a shorter version of the Interferon treatment for certain patients suffering from Hep C. If you want to find out more, here's a link to the story.

Thanks for stopping by.

And Off We Go...

Well, it's not exactly soldiers landing on the beaches of Northern France but D Day is certainly here... And D stands for Drugs!

I picked up my prescription from the hospital’s pharmacy, paid the £14.20 that it will cost me every month and then I sat opposite my very nice consultant, Ms X, who once again listed the side effects I may experience, gave me some goodies to take away [disinfection wipes, booklets and a ‘cool bag’ that will come in handy when I go on holiday as the Interferon injection needs to be kept in a refrigerator] and then we got on with the serious business.

I was shown how to inject 180 micrograms of Peginterferon alfa-2a into my stomach. Apart from a little sting, that was nice, quick and painless. I’ll have to repeat the procedure 48 times in the next year, every Friday.

On top of that, I will have to take 3 200 mg capsules of Rivarin every morning and 2 every night. ‘A bit excessive’ as my mum put it but apparently it’s just as important as the weekly injection. So, I’ll have to get into the habit quite quickly because I will not want to miss any of them.

So, what’s going on then? Well, I’m pleasantly surprised, I must admit. I’ve been trying to be as positive as possible throughout the last week and I think it’s paying off. Apart from a temporary fever, that went as soon as it came after the injection, all I’ve felt so far it’s a bit of tiredness but nothing out of the particular. So far, so good. I’m not going to get overexcited yet because as someone put it [Hi R] there’s 364 days and a few hours to go, so there’s plenty of time for the side effects to kick in but tonight, it’s going very smoothly!

That was a nice post to write! I was expecting to tell you that I was depressed, willing to fight to death with my girlfriend only if I could muster enough energy to get up from the sofa… But then, again, there’s still time! Ha!

I’ll update the blog next week on Friday and hopefully it’ll be an even nicer post.

I promise that this blog won't become just a diary of my experiences but I've just started a new job so time has been a luxury. But the useful links will start rolling in again quite soon. Just bear with me!

Drop us a line if you can’t wait a whole week to hear from me, otherwise see you next Friday!

Check out the Q&A page

Why Prometheus?

Every story has a beginning...

... and, as they say, so it begins!

I had a doctor’s appointment today. THE appointment that I’ve been waiting for ever since my diagnosis. After taking the decision of going through with my treatment a month back, I confirmed it today with my consultant and the ball has finally been set rolling. The doctors were worried the treatment might bring cancer back after so long [if this is you're first time here, welcome] but I was assured that after consulting an oncologist, there doesn’t seem to be any real danger of the Interferon treatment acting as a catalyst for the unwanted return of cancer. In other words, good news!

So, after giving away a lot of blood, being weighted [78 kilos if you must ask!] and a little bit of waiting, my girlfriend and I sat next to each other whilst my consultant explained to me what’s happening next.

From Friday 27.06.08, I will be taking tablets twice a day, seven days a week and having a subcutaneous injection once a week. I’ve been advised to have the injection on Friday evenings because of the side effects [more on that later] and I will be having weekly blood tests to make sure everything is in order with my blood.

So, without further ado, the next year of my life will involve any [or none, or all] of the following side effects:

Decrease in haemoglobin levels

Decrease in white cells levels

Fatigue

Flu-like symptoms

Loss of appetite

Weight loss

Depression

Irritable moods

Decrease in fertility [And increased dangers for any child I may conceive]

[There are many other symptoms online but I’m sticking to the ones that my consultant felt important enough to warn me about]

These were the ones mentioned by my consultant but she was quick to point out that having the treatment doesn’t necessarily mean I’ll experience any of these side effects so we’ll have to wait and see what interesting cocktail the next year has in store for me!

I have a week now to get ready to start and I will be updating this blog once a week to keep anyone interested updated on the ins and outs of my treatment.

In the meantime, if you have any questions, go here. If you want to find out more, check this out, or if you're tired of reading me, go here. And if I bummed you out, have a look at this:

So, the story kicks off here. I hope you join me.

See you next week